On 1st Feb 2012 I became an everyday carer to my eldest daughter, she fell while snowboarding in Vermont, USA and broke one single bone, her C5 and so traumatically became a quadriplegic at 22 years old. I flew to her side in Burlington, Vermont and slowly managed her repatriation to Sydney, her rehabilitation in Royal North Shore Hospital and Royal Rehab (RR) located at Ryde.
I never for one moment doubted that we would rise to the challenges; I never doubted that there was light at the end of our long dark tunnel. I was sure we could solve issues, fill in forms, assertively advocate for her. My family and I experienced Emily’s traumatic, sudden, complete and intimate disability alongside her as carers.
I searched for appropriate reading when I had time to reflect on my situation as a new inexperienced primary carer, and most did not address traumatic injury resulting in quadriplegia from the carer’s perspective. It seemed natural and therapeutic for me to write while watching as a facilitator from the sidelines. I witness and document, my prose are heartfelt and real. I do not presume to understand or have any more than my own story to tell but we have come through.
I feel inspired to share my story to help other carers navigate through their darkness. I feel passionately about educating myself, my family and our communities. I feel driven to advocate for the disabled especially wheelchair users and to support carers.
I aim to enlighten minds on the heartache of traumatic, catastrophic quadriplegia, the realization of my daughter’s lifelong wheelchair use and the strength and resilience she needed to return home, return to the community and to society as a disabled person. If I can shed a shard of light on any of this to help people see the awesome spirit of the disabled, the constant struggle of carers and that success is about being accepted, treated fairly and respected as full members of this modern age.
My blog has simple objectives
- Caring posts
- A-Z of helpful information*
- Access Sydney – information on wheelchair accessible cafes and restaurants by area.*
- Share links to helpful sites.*
- Review / link to appropriate news articles.*
- Share travel recommendations and tips.*
- Guest interviews, maybe you?
- Communicate to carers in Australia and Worldwide. Let’s share our care.
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