Home

743 On 1st Feb 2012 I became an everyday carer to my eldest daughter, she fell while snowboarding in Vermont, USA and broke one single bone, her C5 and so traumatically became a quadriplegic at 22 years old. I flew to her side in Burlington, Vermont and slowly managed her repatriation to Sydney, her rehabilitation in Royal North Shore Hospital and Royal Rehab (RR) located at Ryde.

I never for one moment doubted that we would rise to the challenges; I never doubted that there was light at the end of our long dark tunnel. I was sure we could solve issues, fill in forms, assertively advocate for her. My family and I experienced Emily’s traumatic, sudden, complete and intimate disability alongside her as carers.

I searched for appropriate reading when I had time to reflect on my situation as a new inexperienced primary carer, and most did not address traumatic injury resulting in quadriplegia from the carer’s perspective. It seemed natural and therapeutic for me to write while watching as a facilitator from the sidelines. I witness and document, my prose are heartfelt and real. I do not presume to understand or have any more than my own story to tell but we have come through.

I feel inspired to share my story to help other carers navigate through their darkness.   I feel passionately about educating myself, my family and our communities. I feel driven to advocate for the disabled especially wheelchair users and to support carers.

I aim to enlighten minds on the heartache of traumatic, catastrophic quadriplegia, the realization of my daughter’s lifelong wheelchair use and the strength and resilience she needed to return home, return to the community and to society as a disabled person. If I can shed a shard of light on any of this to help people see the awesome spirit of the disabled, the constant struggle of carers and that success is about being accepted, treated fairly and respected as full members of this modern age.

My blog has simple objectives

  • Caring posts
  • A-Z of helpful information*
  • Access Sydney  – information on wheelchair accessible cafes and restaurants by area.*
  • Share links to helpful sites.*
  • Review / link to appropriate news articles.*
  • Share travel recommendations and tips.*
  • Guest interviews, maybe you?
  • Communicate to carers in Australia and Worldwide. Let’s share our care.

Now go to the top ^ of the page and click on POSTS to read my blogs. Please follow my blog by entering your email into the FOLLOW box on the POSTS page , Please share and feedback to me. Thank you. photo (3) *Everydaycaring does not represent or endorse the accuracy or reliability of any information, content or advertisements contained on, distributed through, or linked, downloaded or accessed from any of the services contained on this blog, nor the quality of any products, information or any other material displayed, purchased, or obtained by you as a result of an advertisement or any other information or offer in, or in connection, with the services herein.

Advertisements

34 thoughts on “Home

  1. A fantastic idea Rachel, you really are an inspiration my friend. Look forward to reading your blogs- wow how v modern that sounds!

  2. Woot Woot! WELL DONE! Fantastic that this is up, and I’m sure it will be of great help and inspiration to thousands, just as you are in person. Congratulations.

  3. Rachel am so impressed again in how you have transformed this challenging experience into something which touches everyone who knows you and can now also help and support other people in the wider community

  4. Rachel, I never knew this and am inspired by your drive and positivity. I too have had a few traumatic issues and the strength to remain positive always, keeps us all going!! Good luck with the blog and love to you and Emily. Jane xx

  5. I am sure this will be a very therapeutic and useful tool for you and others in challenging situations. I will watch with great empathy, Katexx

  6. I’m so in awe of your inner strength and composure – its very inspiring to those of us who winge about silly every day nonsenses! Xxx

  7. Rachel this is inspirational and will shed light on the challenges that carers and people living with disability face every day. I am sure that sharing your experiences will have a positive effect and I continue to admire your family’s strength, commitment and courage but most of all the love you have for one another. I look forward to reading more – great work xxx

  8. You are truly amazing and such an inspiration to us all Rachel! And am so glad to see your wonderful writing shared with a wider audience as you have a real gift! Congratulation xx

  9. All I can say is that you have my utmost respect and admiration, Raquelita. You are an inspiration to me and all who know you and your beautiful family!

  10. Rachel ,your depths of giving and sharing appear bottomless. How fortunate Emily is to have you in her corner of life fighting for her rights , her acceptance , her success through your practicality and “can do” attitude. Thank YOU for sharing your generous gift with carers and all those who care.

  11. Rachel. What an amazing idea. I am not surprised that you would turn what has been a bigger personal trauma than any of us can imagine into something that will benefit not only you but so many other people in similar situations. As so many have said, you are a true inspiration to us all. Lots of luck with it, I will read your blogs with great interest.xx

  12. This is a wonderful idea Rachel – good luck with it.!! I look forward to reading your posts . I know it will be a great resource and huge inspiration to many as it grows. xx

  13. Tina and Pedro
    What a great start, Rachel. This will become a significant resource for many in your country and elsewhere. Keep up the good work and by the way you owe me 50cents for the coffee in The Rocks! xx

  14. Rachel, you are truly inspirational and I will be forever vigilant to find recommendations to add to your blog in making everyday caring that little more mobile.

  15. Rachel, we have never met but I had heard of Emily’s accident through Katy. I think your blog is beautifully written and presented. I can only say that I am humbled by your desire to reach out and benefit others, who find themselves in the same situation. Good luck with your blog, I for one will be tuned in!

  16. Rachel, I have always been blown away by your energy and enthusiasm for life – you put the A to Z into Zest and I wasn’t surprised I was completely gripped by your blog!
    Cx

  17. Hi Rachel you’ve always been an inspiration from our old days at the Watford pool. How you and Emily have coped and turned this tragic event into something so positive makes me very proud to call you a friend. Love Anne xr

  18. Rachel this is a great idea. The information you provide is informative and honest and has helped educate me too as a personal trainer when rehabbing clients with spinal injuries. Best wishes to all of your family.

  19. Hi Rachel thanks very much for taking the time to write this – you are absolutely right that we think often of Emily but don’t understand all that goes into caring for her. We’ve not met but I work for Michael Page HK and have known Gary for 7 years so I really appreciate your perspective too. Best wishes and all blessings for the Christmas season, Joanne and Anthony Thompson

  20. Hi, I am a full time carer for my husband who broke his C4/5 in 2010. We have 3 teenaged boys. Deb Bond gave me the link to your blog and I think it’s a great idea. I haven’t found many carer things that have been helpful honestly. I live at Ingleburn which is out near Campbelltown. I look forward to getting to know you through reading your blog and am happy to input if that’s helpful too. Cheers, Elly

    • Dear Elly
      I am glad that the blog found to you – I am reaching out to communicate to carers as we are all in need of peer support. I hope you find the blog useful and funny. I look forward to getting to know you too. Please feel free to comment and exchange info as that’s my aim.
      XXX

  21. Everyone in the community needs to be made aware of the needs of people with extreme mobility impairments and to treat them with extra special support and respect. We also need to support the parents and carers in every way we can.

  22. Rachel! You are an inspiration! Your beautiful daughter is so fortunate to have you. After seeing you today, I really felt for you, and your family. Now, on my train ride home from work, I read your blog…. And I have tears in my eyes. Tears of empathy, as I can only imagine a small fraction of what you have endured…. Emily is lucky to have such a patient, caring, kind, lovely lady in her life she can proudly call “Mum”. All my best wishes to you, Rachel. Xx

  23. Hi RACHEL, I came across your site while seeking “SOCIAL SITES FOR THE DISABLED”, & after reading much about you & what you do, I am in “AWE” for lack of a better term. I am not a care-giver, as we call it in the STATES, I am disabled & that has led me to being put in a wheelchair. I hope I am mistaken in the thought that your site is geared more towards CARE GIVERS, as I am hoping to become acquainted with folks like yourself, people who have a genuine concern for the POSITIONS that they find their lives in,, & such passion to PULL THROUGH AT ANY COST, like, in the blink of an eye, all of a sudden your whole LIFE-PLAN has changed, & now you have to START ANEW, & it can be exasperating at times, & it can be rewarding at times as well. I won’t take up much of your time, but I wanted to tell you, I pray that their would be more WONDERFUL PEOPLE like you in THE U.S.. So, I will be following you from across the “BIG POND” & try to BE INSPIRED by all that you do, not just in your personal situation, but probably for many, many others, who are disabled, all over the world. KUDOS to you. GOD BLESS YOU DEAR, & I HOPE & PRAY FOR YOUR LOVED ONE, that GOD PROVIDES HER SUCH WONDERFUL HEALING, & I WILL PRAY FOR YOU, THAT ALL YOUR NEEDS BE MET, & THAT YOU TO FIND SOLACE IN KNOWING PEOPLE LIKE ME ARE PRAYING FOR THE BOTH OF YOU, w/LOVE, IN THE NAME OF THE HOLY SPIRIT, Lee

  24. Hi Rachel and Emily
    I have come across you story on the Carers NSW magazine. I work in the field of Care provision as a Case Manager and feel absolutely inspired by your experience. All my love to Emily and may the strengh of her mother be a sourse of peace in Your strugle.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s